Coping With Infertility and Loss

Grief doesn’t only apply to those who experience the death of a family member, friend or co-worker. Fertility concerns, pregnancy loss, adoption loss or complications with obtaining a child can also result in grief. Those grappling with these experiences grieve the loss of dreams, goals and expectations.  

Barriers to growing a family 

Those who face fertility issues may believe their difficulties are unique. Barriers are more common than are often recognized.  

  • 1 in 8 couples are affected by fertility challenges in the United States 

  • About 6.7 million Americans experience difficulty conceiving each year 

  • 15%-20% of reported pregnancies end in miscarriage 

  • About 21,000 stillbirths occur in the U.S. annually 

  • About 1 in 1,000 pregnancies is a molar pregnancy 

  • 1 in 50 pregnancies is an ectopic pregnancy 

  • About 12% of people trying for a child after their first have trouble conceiving  

Because the topic of infertility, miscarriages and loss is stigmatized, we don’t know when there may be others facing similar challenges. While each couple’s journey is an individual and unique experience, grief is universal.  

Common factors that can impact fertility  

Fertility can be influenced by various biological and environmental components. Here are some common factors that can impact fertility: 

Age 

  • Women’s fertility significantly declines after age 35 

  • Men’s fertility also decreases with age, though typically later than in women 

Hormonal imbalances 

  • Irregular menstrual cycles, polycystic ovary syndrome (PCOS) and thyroid disorders can affect ovulation 

  • Low testosterone levels can impact sperm production in men 

Weight 

  • Both underweight and overweight conditions can affect hormonal balance and ovulation 

  • In men, obesity can lead to lower sperm quality and quantity 

Lifestyle factors 

  • Smoking, excessive alcohol consumption and recreational drug use can negatively impact fertility in both men and women 

  • Poor diet and lack of exercise can also affect fertility 

Medical conditions 

  • Endometriosis, uterine fibroids and pelvic inflammatory disease (PID) can impair fertility in women 

  • Varicoceles (enlarged veins in the scrotum), infections and testicular issues can affect men’s fertility 

Sexually transmitted infections   

  • Chlamydia and gonorrhea can cause damage to the reproductive organs, impacting fertility 

Environmental exposures 

  • Pesticide exposure, heavy metals, and other environmental toxins can reduce fertility 

  • Occupational hazards, such as prolonged exposure to heat or radiation, can affect sperm quality 

Chronic stress 

  • In women, it can disrupt hormone levels and ovulation in women 

  • In men, stress can affect sperm production and sexual function 

Medications and treatments

  • Certain medications, including chemotherapy and radiation treatments, can impair fertility 

  • Long-term use of anabolic steroids can impact sperm production 

Genetic factors 

  • Genetic disorders, such as Klinefelter syndrome in men and Turner syndrome in women, can affect fertility 

  • Family history of reproductive issues can also be a factor 

Previous surgeries 

  • Surgeries involving the reproductive organs, such as tubal ligation or vasectomy, can impact fertility 

Understanding and addressing these factors can help improve the chances of conception and overall reproductive health. If there are concerns about fertility, consulting a healthcare provider or a fertility specialist is recommended. 

Impact of infertility 

Infertility and loss can impact not only you but those in your circle, such as a spouse or partner, parents, a child that wants a sibling, well-meaning friends and family or work colleagues. No matter how many people are in your circle, the process can still be terribly isolating because most people don’t understand the mental and physical toll infertility and loss can take on you.  

Infertility and loss can impact you due to: 

Medical interventions. Endlessly taking medications, supplements and shots that may cause you to be sick, gain weight and mimic the symptoms of pregnancy without any reward at the end. 

Time and money. Infertility can incur large expenses. Plus, there is time off work for treatments or surgeries. You may not take vacations so you can save money for treatments or dedicate your life to a schedule of two-week increments from a period to ovulation to the next period. 

Emotionally. You may get your hopes up only for infertility or complications to continue. Despite your efforts to be realistic, the repetition of this process can be emotionally difficult and discouraging.  

Relationships. Infertility may lead to losing friends who don’t understand what you’re going through. You may also feel you have less in common with them if you’re in different phases of life. Additionally, you may experience pressure from parents, siblings and friends, who are well-intentioned and want to see you with a growing family.  

Identity. You may feel a loss of your identity or desired role as your expectations are forced to change over and over from hope to loss. Additionally, you may feel judgement from others when beginning treatments for your struggles in family planning. 

Low self-esteem. You may become upset with your body and how you feel and look. Perhaps you wonder if your partner would be better off with someone else who can have children without complications.  

Triggers 

The grief of loss during infertility can be triggered by a number of things, including questions and statements such as: 

  • “When are you guys going to start having kids?” 

  • “When will you give me grandkids?”  

  • “When will there be a sibling for your little one?”  

  • “You’re not getting any younger; time is running out.”  

  • “Just relax; it will happen in God’s time.”  

  • “Why don’t you just adopt?”  

  • “I wish I had your problem; look, I’m pregnant again.” 

  • “Here, take one of mine; I’ve got too many as it is.”  

Triggers also happen when: 

  • It seems like every woman you see is pregnant 

  • Adorable kids seem to be everywhere 

  • You long to hold a baby of your own, but despite your best efforts, your arms are still empty 

  • When you attend baby showers and gender reveal parties for others 

  • You see the ultrasound pictures another mom excitedly shows you  

Additionally, it may happen every time you are just a day late for your period and excitedly convince yourself you are feeling pregnancy symptoms, only to face disappointment when menstruation begins. 

Disenfranchised grief  

Disenfranchised grief refers to grief that is not acknowledged or validated by society. Examples of disenfranchised grief include: 

  • The loss of a pet 

  • The end of a non-marital relationship 

  • Grief due to infertility or a miscarriage 

People experiencing this type of grief may not receive support because their emotions and the significance of their loss are overlooked or minimized by others. This lack of recognition can exacerbate the grieving process, making it more difficult for the individual to cope and heal. Infertility and loss can cause deep sorrow, and the absence of acknowledgement of this pain from others can be exceedingly hurtful.  

Some common reactions to grief after loss may include: 

  • Emptiness 

  • Guilt or blame 

  • Shame 

  • Moving in and out of “stages” (such as shock, numbness, depression, anger, bargaining and acceptance) 

  • Difficulty eating and sleeping   

  • Sadness and longing  

Complicated grief 

Complicated grief, also known as persistent complex bereavement disorder, is a prolonged and intense form of grief that interferes with an individual’s ability to function normally. Unlike typical grief, which gradually diminishes over time, complicated grief persists and can worsen, lasting for months or even years. It’s common for those struggling with obtaining a child to experience complicated grief.  

People experiencing complicated grief may feel intense sorrow and pain, have difficulty accepting the loss and struggle with resuming their daily lives.  

Symptoms often include:  

  • Persistent yearning 

  • Preoccupation with the loss 

  • Difficulty engaging in activities or relationships 

  • Difficulty regulating emotions  

  • Feelings of guilt 

  • A sense of meaninglessness 

Complicated grief requires professional intervention, such as therapy, to help individuals process their emotions and find ways to move forward while honoring their loss. 

Learning to heal 

There are many ways to move forward and learn to heal. See what works best for you, keeping in mind that this may change depending on your current emotional state and needs. Some of the ways include: 

  • Acknowledging the pregnancy and baby existed 

  • Validate your pain and grief 

  • Reaffirming that the loss is not your or your partner’s fault 

  • Find resources to help talk to family members 

  • Create a memorial to acknowledge the loss, even if it was early

  • Understand that your grieving process will be unique to you 

  • Support yourself emotionally by taking care of yourself physically 

  • Remember that you are not alone 

  • Be gentle with yourself 

  • Talk about your loss and grief when you can 

  • There are various routes of healing; healing is not forgetting

Your journey, successes, losses, and emotions may look different from others, which is OK. You and your feelings are valid. Seek face-to-face support from people who care about you. You can also talk with a therapist to help you learn coping techniques and ways to heal in a safe space.